Marley still is battling her collapsed lung, but she extubated like a pro! Dr. Lindmark came in yesterday to tell us her lung is still completely whited out on her xrays and that indicates her lung is still collapsed. Our next step is a CT scan to prove it's her heart causing her lung problems and not anything else. The doctors believe Marley's heart is so big that when she is on her back it's causing her airway to her left lung to be closed off. The only thing that can fix this is moving her open heart surgery up to possibly this week.
Marley is on her belly most of the day, this allows her heart to fall forward and not put pressure on her lung and allows her to breathe easier. But, it also causes discomfort to Marley since she just had the gtube placed in her belly, and a central line placed in her trunk area. Even with all this going on Marley still keeps a smile on her face, possibly because she has never known anything different. Marley has never known anything but being sick.
I do not know if I mentioned in my last blog, but intubating Marley is very dangerous, in fact life threatening because of her pulmonary hypertension. So we decided to have Marley dedicated before her last heart cath. So in room 115 in front of her family, some nursing staff, and doctors, Brother Kelvin dedicated our sweet angel back to God. We really wanted Marley to be dedicated with her cousin Xeplyn, but we felt time may not be on our side so we decided last Tuesday was a perfect day for her dedication. Marley came through the heart cath like a pro, God is truly wrapping his arms around our sweet Angel.
We are agreeing with God that our Marley is here for a reason, and will live a long and healthy life. We just have to get past these few obstacles, but God will not give us something we cannot handle. We can do all things through Christ. I won't lie some days are harder than others, and I question why this is happening to my sweet baby and my family. Then I look at my sweet Marley and know she was chosen for me. She may have not been born with an anatomically correct heart, but it the most beautiful, pure, and perfect heart I have ever seen. She is our gift and I am so thankful she is my daughter.
I will update everyone about the CT scan on Monday and what our next step will be. Keep us in your prayers. Pray for Marley's strength and healing. Pray for strength and understanding for me and Brian.
For you created my inmost being; you knit me together in my mother's womb. (NIV) Psalms 139: 13
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